I was discussing with some friends in Church who’ve also been ill or through surgery how the concept of being stuck in our houses for 12 weeks wasn’t too worrying as we’ve had so much practice at it. I realise that for many people it is terrifying, particularly if you live alone. We thought it […]
Read more "How to cope with self-isolation"When I was in 6th form (ages 16-18), 18 people died! Some were very close; my Physics Teacher, my Neighbour, my Auntie Doris and a friend who I’d grown up with who had the same condition as me (Arthrogryposis), her name was Eleanor. Eleanor was the most loving person, she asked “Why?” about everything. The […]
Read more "Sharing our Doubts and Finding God in them"I haven’t written much for a while. This is actually a good sign, when I’m well I’m able to work. This keeps me busy and generally means I’m out of hospital. Last year I was able to work, when I can work I like to make the most of it. I’m so grateful to be […]
Read more "Digestive Breakdown"On Sunday I was asked to be interviewed in our Church Service. This was an amazing opportunity and I was so grateful to be able to share with the Church what God was challenging me about. Below is the interview, (SR is the person who interviewed me): SR: In our story today we see that […]
Read more "How We Support Those Who Suffer"I wanted to write about my experience in this centre, also about my journey to get a diagnosis. Partly because there isn’t much information about the centre, I looked it up online to find out where I’d be going, but I couldn’t find out a lot. So, I’m hoping if anyone needs to know what […]
Read more "My Stay at the Neuromuscular Complex Care Centre, London"I’ve been struggling with acceptance on many levels over the past few weeks. Firstly, I struggle to believe people will accept me as I am, warts and all. I am trying to learn that I am a person separate to my illnesses, they have become my identity, but they aren’t. People see me as a […]
Read more "Acceptance Vs. Giving Up"I have been reading Claire’s book which came out on the 3rd November. It is titled ‘Taking off the Mask.’ It is a very honest account of how her own masks were ripped off in front of her whole Church, she explores why we feel the need to put masks on and cover up who […]
Read more "Taking Off the Mask by Claire Musters"